digestive disorders

Jess’ ME/CFS Blog
A young adult battling multiple debilitating chronic illnesses
Living Today Well
As a lifelong “spoonie” I have faced the blank stare of doctors who can’t or have no idea how to help, the glare of unbelieving bosses (and “friends”) and pity in the eyes of those who truly love and care for me. I have experienced both good and bad times, like most of you.

I have fought to recover from nine major intestinal surgeries, ongoing intestinal inflammation, chronic debilitating nausea, Hashimoto’s Thyroiditis, abnormal kidney and liver function, abnormal endocrine function, cancerous fibroid tumors resulting in multiple surgeries finally necessitating a full hysterectomy… and now my new favorite – abdominal cutaneous nerve entrapment syndrome – or ACNES.

I have spent my life adapting my behaviors and activities to achieve a level of normality. And I have been quite successful at times. Other times – not so much. I have learned to be very good at hiding my symptoms and medical issues by slapping on a happy face, and some great make-up! I am sure you have too.

So I decided to start this blog to create a resource to make those days a bit more bearable. A place where I strive to find the nugget of goodness in this sea of negativity; the crumb of information or encouragement that may just help one of my fellow “spoonies.” My goal is to share the lessons I have learned and the methods that help me. Hopefully I will help you, make the most you can out of every day.
Memoirs of a Strong Woman; A Frightening Look Inside the US Healthcare System
A trip to the local Emergency room culminates in profiling, medical neglect, and then gaslighting, and ultimately physical abuse by a sadistic on-call neurologist and then his female resident. Little does the patient know this is just the beginning of a horror story that never seems to end.
Moving Naturally with Hypermobility
Education for patients and healthcare providers on proper physical therapy techniques, natural movement, and restorative exercise for Hypermobility Syndromes, such as Ehlers-Danlos syndrome (EDS), including the complexities often caused by overlapping conditions.

Living with chronic pain is one of the hardest things that many of us have to endure on a daily basis. Living with pain while also coping with the multi-systemic effects of joint hypermobility, commonly diagnosed as Ehlers-Danlos syndrome (EDS), is even more challenging. One of the best treatments for chronic pain due to Hypermobility Syndromes/EDS is learning how to move and exercise properly — our muscles do what our connective tissues cannot.

Move More. Move Better.
Not So Average Mama
Not So Average Mama blog is a blog about life in general. I write about many topics including Chronic illness and alternative ways of treating. We are also an unschooling family. I work as a professional photographer and spend my spare time with my kids at roller derby as well as fostering puppies.
Peering Through the Fog
A means of creating a community where those of us with chronic illness/pain will be able to forge friendships and give support to each other as we deal with chronic illness and our day-to-day lives.
Primary Immune Patients United
Empowering patients to make informed and proactive health care decisions. In contrast, to current profit-and-politics that are derived from patient illness. Identifying fact from fiction by exposure to a variety of relevant evidence, research, legislation, and current concerns. Topics include comprehensive matters in health care, quality of life, unique experiences and challenges of patients, and families, with rare disease and invisible illnesses.
Sarah Frison, CHC
Health coach for spoonies.
The Enigma – Wrapped in a DNA Encoded Riddle
Single, empty nester, living with chronic Illness who in 2016 was struck with yet another illness that left the rural Doctors of the small Midwest town she was living stumped. This is her journey through a silent home, a long road trip and clinging to the hope for answers.
The Invisible F
A blog about life with fibromyalgia and depression
The Sick Housewife
A record of Lena’s health and daily life as a chronically ill housewife!
This Is Feliz
I write beauty product reviews and Spoonie guides and how to’s for the chronically ill.
Wear, Tear, & Care
Wear, Tear, & Care uses word therapy to conquer chronic pain. This blog offers advice for those dealing with chronic pain and illness, using humor and personal anecdotes to show that patients can still have productive lives despite physical obstacles.
Zebra Writes
Thoughts on Chronic Illness/Pain (Hopefully) with a Bit of Humor and Grace
zebrawrites.com