anxiety/ depression, dysautonomia, mental illness, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
A little blog revealing the raw realities of living with chronic illness, rare disease, and mental illness. I share tips and tricks to dealing with the trials of illness, and I hope to encourage others through my writing
anxiety/ depression, chronic pain, digestive disorders, endometriosis, gastroparesis, mental illness, rare disease
Eco Fluffy Mama is a blog that focuses on Green Living & Chronic Illness. Tamsin talks about her own health conditions and also hosts guest posts for others to talk out about their health conditions.
ADD/ADHD, allergies, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, bladder issues, Celiac’s disease, CFS/ME, chronic pain, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, fibromyalgia, gastroparesis, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, mental illness, migraine, Multiple Sclerosis (MS), neurological disorders, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, thyroid disorders, TMJ, vulvodynia
EDS Wellness is a non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with Ehlers-Danlos syndrome (EDS), through print and digital media resources and materials, including seminars, webinars, conferences, coaching and patient advocacy.
I’m actually suggesting a listing for Myotonic Dystrophy. It is a “rare disease” but actually the most common adult-onset muscular dystrophy. We even have a patient advocacy organization: http://myotonic.org/
HAE Girl is a blog about my experiences with Hereditary Angioedema, and Polycystic Ovarian Syndrome. HAE Girl is all about being yourself, sharing our stories, laughing at our lives and of course, creating a community of chronic illness fighters to support each other.
A humorous and sometimes emotional take on lessons learned after being diagnosed with a desmoid tumor.
arthritis, autoimmune disorders, chronic pain, colitis, Crohn’s disease, digestive disorders, gastroparesis, Inflammatory bowel disease, irritable bowel syndrome, neurological disorders, rare disease, sleep disorders
I’m Sara and I have Crohn’s disease and a rare disease called, Chronic Intestinal Pseudo Obstruction. I also had my entire large intestine removed and live with a J-pouch but prior to that lived with a temporary ileostomy.
allergies, CFS/ME, chronic pain, CRPS (xomplex regional pain syndrome), digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, fibromyalgia, migraine, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease, Rheumatoid Arthritis (RA), sleep disorders
Occupational Therapy, Life Experience & Creative Thinking
anxiety/ depression, Blogs, chronic pain, migraine, neurological disorders, rare disease, thyroid disorders
A blog about trying to live a positive life, with a rare brain condition called IIH and writing to raise awareness that migraine is more than just a headache. My aim is to help just one person with my story, if I achieve that, then I have done what I set out to do.