rare disease

A Chronic Spoonful
Thoughts and stories from the world of chronic pain, illness, and disability.
A Picnic With Ants
My life disAbled, living with multiple chronic illnesses. It just is.
AS I Live & Breathe
A Woman’s Journey With Rare Disease
Bear Finding Balance
A little blog revealing the raw realities of living with chronic illness, rare disease, and mental illness. I share tips and tricks to dealing with the trials of illness, and I hope to encourage others through my writing
Bridgwater Crafts
A blog about living with chronic diseases while crocheting, knitting and reading.
Cat Burchmore – Reveal Your Magic
A blog with a unique perspective from someone living with cancer. Covering all life topics, living with a chronic illness and work life, too.
Eco Fluffy Mama
Eco Fluffy Mama is a blog that focuses on Green Living & Chronic Illness. Tamsin talks about her own health conditions and also hosts guest posts for others to talk out about their health conditions.
Elizabeth Barone
Twenty-something with an autoimmune disease trying to build a career as an author, one book and pill at a time.
Finding my Miracle
Keeping it real and laughing when I can as I figure my way out through this medical maze that is my life.
Glass Half Full
I’m actually suggesting a listing for Myotonic Dystrophy. It is a “rare disease” but actually the most common adult-onset muscular dystrophy. We even have a patient advocacy organization: http://myotonic.org/
Green Eggs & Spoons
Sharing my journey of trying to find my new normal as a medical zebra with a dash of comedy and a splash of realistic optimism.
HAE Girl
HAE Girl is a blog about my experiences with Hereditary Angioedema, and Polycystic Ovarian Syndrome. HAE Girl is all about being yourself, sharing our stories, laughing at our lives and of course, creating a community of chronic illness fighters to support each other.
Homeschool Insights
A family blog: Sharing encouragement and tips for living with Chronic Illness and Homeschooling
hopeforheather
“Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences.”
HypoGal, Shortcuts To Living With A Chronic Ilness
HypoGal Blog shares everyday life with a chronic illness.
I’m Sick And So Are You
A humorous and sometimes emotional take on lessons learned after being diagnosed with a desmoid tumor.
Inflamed & Untamed
I’m Sara and I have Crohn’s disease and a rare disease called, Chronic Intestinal Pseudo Obstruction. I also had my entire large intestine removed and live with a J-pouch but prior to that lived with a temporary ileostomy.
Inkblots of Hope
Hope is an option, even in chronic illness and other seasons of pain.
Laughing while you’re crying
A blog about trying to live a positive life, with a rare brain condition called IIH and writing to raise awareness that migraine is more than just a headache. My aim is to help just one person with my story, if I achieve that, then I have done what I set out to do.