Blood Clot Recovery Network
When I was 29 years old, I was diagnosed with a blood clot in my leg, known as deep vein thrombosis (DVT) and a pulmonary embolism (PE), or blood clot in my lung – known together as venous thromboembolism (VTE). An active runner, I felt a pain in my calf and my side that I thought was a running injury and within days, I went from being active to fighting for my life in the hospital. I had never been sick before and it was the most terrifying experience I have ever been through. I was ultimately diagnosed with a blood-clotting condition called antiphospholipid syndrome (APS), a chronic and somewhat rare autoimmune disease that requires long-term treatment with anticoagulants. Once I was discharged from the hospital over a week later, I found myself feeling undeniably alone and overwhelmed by the prospect of the multi-year recovery period ahead of me. I was desperate for information and support, but there was little out there for people like we who had survived blood clots. I created Blood Clot Recovery Network as a way to not only share my story, but to also provide an online community—and ultimately healing—for other people who share my journey.