Tales of a Medical Oddity–Tumor Blues Blog
My chronic illness journey began with my first Cushing’s Disease diagnosis in 200. Recurrences in 2009 and 2015 soon followed. As I struggle with the daily aches and pains that come with taking the high doses of steroids necessary to persuade my body to function, doing the job of my pituitary gland, which will never “wake-up”. And this beast called Cushing’s has caused multiple other diseases and disorders. I am navigating my way through these new diagnoses daily, learning how to live with Growth Hormone Deficiency, Complex Regional Pain Syndrome (CRPS), Fibromyalgia, migraine and more.
I am navigating the difficulties that come with living with chronic illness, how one deals with a disease that people (including many doctors and medical professionals) don’t fully understand, and how it can be tough to spend a good chunk of your young adult life being sick. It’s a learning curve that I work on every day.
So I count my spoons and write. And try to keep humor in everything I do.