rare diseases
A Woman’s Journey With Rare Disease
anxiety/ depression, Blogs, chronic pain, migraine, neurological disorders, rare disease, thyroid disorders
A blog about trying to live a positive life, with a rare brain condition called IIH and writing to raise awareness that migraine is more than just a headache. My aim is to help just one person with my story, if I achieve that, then I have done what I set out to do.
ADD/ADHD, autoimmune disorders, bladder issues, chronic pain, digestive disorders, dysautonomia, fibromyalgia, gastroparesis, neurological disorders, PTSD, rare disease, sleep disorders, TMJ
A trip to the local Emergency room culminates in profiling, medical neglect, and then gaslighting, and ultimately physical abuse by a sadistic on-call neurologist and then his female resident. Little does the patient know this is just the beginning of a horror story that never seems to end.



