rare disease

A Chronic Spoonful
Thoughts and stories from the world of chronic pain, illness, and disability.
A Picnic With Ants
My life disAbled, living with multiple chronic illnesses. It just is.
Achy Smile
Achy Smile, a blog written by Erica Carrasco, gives a platform to migraine. Together with guest posts, Erica brings awareness to migraine and other illnesses. Life is hard enough without illness, smiling through the pain helps her get through the day.
Achy Smile
AS I Live & Breathe
A Woman’s Journey With Rare Disease
Bear Finding Balance
A little blog revealing the raw realities of living with chronic illness, rare disease, and mental illness. I share tips and tricks to dealing with the trials of illness, and I hope to encourage others through my writing
Brains & Bodies
Hi I am Morgan Isabella Shaw. 24 years old an a professional patient. A blog covering chronic and invisible illnesses, mental health, food allergies and well being. Hop over to Brains & Bodies to find out more.
Bridgwater Crafts
A blog about living with chronic diseases while crocheting, knitting and reading.
Cat Burchmore – Reveal Your Magic
A blog with a unique perspective from someone living with cancer. Covering all life topics, living with a chronic illness and work life, too.
Eco Fluffy Mama
Eco Fluffy Mama is a blog that focuses on Green Living & Chronic Illness. Tamsin talks about her own health conditions and also hosts guest posts for others to talk out about their health conditions.
Elizabeth Barone
Twenty-something with an autoimmune disease trying to build a career as an author, one book and pill at a time.
Finding my Miracle
Keeping it real and laughing when I can as I figure my way out through this medical maze that is my life.
Glass Half Full
I’m actually suggesting a listing for Myotonic Dystrophy. It is a “rare disease” but actually the most common adult-onset muscular dystrophy. We even have a patient advocacy organization: http://myotonic.org/
Green Eggs & Spoons
Sharing my journey of trying to find my new normal as a medical zebra with a dash of comedy and a splash of realistic optimism.
HAE Girl
HAE Girl is a blog about my experiences with Hereditary Angioedema, and Polycystic Ovarian Syndrome. HAE Girl is all about being yourself, sharing our stories, laughing at our lives and of course, creating a community of chronic illness fighters to support each other.
Homeschool Insights
A family blog: Sharing encouragement and tips for living with Chronic Illness and Homeschooling
hopeforheather
“Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences.”
Hustle and Heart
An inside look at my life experiences, being chronically ill and much more!
HypoGal, Shortcuts To Living With A Chronic Ilness
HypoGal Blog shares everyday life with a chronic illness.
I’m Sick And So Are You
A humorous and sometimes emotional take on lessons learned after being diagnosed with a desmoid tumor.
Inflamed & Untamed
I’m Sara and I have Crohn’s disease and a rare disease called, Chronic Intestinal Pseudo Obstruction. I also had my entire large intestine removed and live with a J-pouch but prior to that lived with a temporary ileostomy.
Inkblots of Hope
Hope is an option, even in chronic illness and other seasons of pain.