bladder issues
anxiety/ depression, autoimmune disorders, bladder issues, CFS/ME, chronic pain, digestive disorders, dysautonomia, fibromyalgia, Interstitial Cystitis, irritable bowel syndrome, mental illness, Postural Orthostatic Tachycardia Syndrome (PoTS), PTSD, vulvodynia
Holistic health blog with a focus on chronic pain and illness and mental health
bladder issues, chronic pain, digestive disorders, Inflammatory bowel disease, irritable bowel syndrome, rare disease, thyroid disorders
As a lifelong “spoonie” I have faced the blank stare of doctors who can’t or have no idea how to help, the glare of unbelieving bosses (and “friends”) and pity in the eyes of those who truly love and care for me. I have experienced both good and bad times, like most of you.
I have fought to recover from nine major intestinal surgeries, ongoing intestinal inflammation, chronic debilitating nausea, Hashimoto’s Thyroiditis, abnormal kidney and liver function, abnormal endocrine function, cancerous fibroid tumors resulting in multiple surgeries finally necessitating a full hysterectomy… and now my new favorite – abdominal cutaneous nerve entrapment syndrome – or ACNES.
I have spent my life adapting my behaviors and activities to achieve a level of normality. And I have been quite successful at times. Other times – not so much. I have learned to be very good at hiding my symptoms and medical issues by slapping on a happy face, and some great make-up! I am sure you have too.
So I decided to start this blog to create a resource to make those days a bit more bearable. A place where I strive to find the nugget of goodness in this sea of negativity; the crumb of information or encouragement that may just help one of my fellow “spoonies.” My goal is to share the lessons I have learned and the methods that help me. Hopefully I will help you, make the most you can out of every day.
I have fought to recover from nine major intestinal surgeries, ongoing intestinal inflammation, chronic debilitating nausea, Hashimoto’s Thyroiditis, abnormal kidney and liver function, abnormal endocrine function, cancerous fibroid tumors resulting in multiple surgeries finally necessitating a full hysterectomy… and now my new favorite – abdominal cutaneous nerve entrapment syndrome – or ACNES.
I have spent my life adapting my behaviors and activities to achieve a level of normality. And I have been quite successful at times. Other times – not so much. I have learned to be very good at hiding my symptoms and medical issues by slapping on a happy face, and some great make-up! I am sure you have too.
So I decided to start this blog to create a resource to make those days a bit more bearable. A place where I strive to find the nugget of goodness in this sea of negativity; the crumb of information or encouragement that may just help one of my fellow “spoonies.” My goal is to share the lessons I have learned and the methods that help me. Hopefully I will help you, make the most you can out of every day.
ADD/ADHD, allergies, anxiety/ depression, arthritis, autoimmune disorders, bladder issues, Blogs, cancer, Celiac’s disease, CFS/ME, cluster headache, colitis, CRPS (xomplex regional pain syndrome), digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, epilepsy, fibromyalgia, gastroparesis, Hodgkins lymphoma, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, mental illness, migraine, Multiple Sclerosis (MS), neurological disorders, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, thyroid disorders, TMJ, vulvodynia
An online resource for research articles and publications on Mast Cell Activation Disease (MCAD), including news and information concerning Dr. Lawrence B. Afrin’s newly published book, ‘Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity.’ (2016)
ADD/ADHD, autoimmune disorders, bladder issues, chronic pain, digestive disorders, dysautonomia, fibromyalgia, gastroparesis, neurological disorders, PTSD, rare disease, sleep disorders, TMJ
A trip to the local Emergency room culminates in profiling, medical neglect, and then gaslighting, and ultimately physical abuse by a sadistic on-call neurologist and then his female resident. Little does the patient know this is just the beginning of a horror story that never seems to end.
ADD/ADHD, allergies, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, Bell’s palsy, bladder issues, Blogs, CFS/ME, chronic pain, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), diabetes, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, epilepsy, fibromyalgia, gastroparesis, heart disease, Hodgkins lymphoma, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, Meniere’s Disease, mental illness, migraine, Moebius syndrome, Multiple Sclerosis (MS), Myasthenia Gravis, neurological disorders, Parkinson’s, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, Still’s disease, thyroid disorders, TMJ, Venous thromboembolism (VTE), vulvodynia
Education for patients and healthcare providers on proper physical therapy techniques, natural movement, and restorative exercise for Hypermobility Syndromes, such as Ehlers-Danlos syndrome (EDS), including the complexities often caused by overlapping conditions.
Living with chronic pain is one of the hardest things that many of us have to endure on a daily basis. Living with pain while also coping with the multi-systemic effects of joint hypermobility, commonly diagnosed as Ehlers-Danlos syndrome (EDS), is even more challenging. One of the best treatments for chronic pain due to Hypermobility Syndromes/EDS is learning how to move and exercise properly — our muscles do what our connective tissues cannot.
Move More. Move Better.
Living with chronic pain is one of the hardest things that many of us have to endure on a daily basis. Living with pain while also coping with the multi-systemic effects of joint hypermobility, commonly diagnosed as Ehlers-Danlos syndrome (EDS), is even more challenging. One of the best treatments for chronic pain due to Hypermobility Syndromes/EDS is learning how to move and exercise properly — our muscles do what our connective tissues cannot.
Move More. Move Better.
ADD/ADHD, anxiety/ depression, bladder issues, Blogs, chronic pain, fibromyalgia, Interstitial Cystitis, irritable bowel syndrome, mental illness, TMJ
FIBRO WHAT?!
I did not know what FIBROMYALGIA was until I was diagnosed in November 2018. Being the teacher/learner I am, I began to research and found great resources (some really bad). I have become pretty educated about what it is, how it affects me, the whys (as much as there can be), and how to manage it so that I can live my life FULLY, on my terms, even while having pain. I feel that sharing my journey can give insight to others on their own, much like others have helped me.
I did not know what FIBROMYALGIA was until I was diagnosed in November 2018. Being the teacher/learner I am, I began to research and found great resources (some really bad). I have become pretty educated about what it is, how it affects me, the whys (as much as there can be), and how to manage it so that I can live my life FULLY, on my terms, even while having pain. I feel that sharing my journey can give insight to others on their own, much like others have helped me.
A blog following me and my family..living with my chronic pain, back problems, EDS, teenagers, surgery and life
anxiety/ depression, autoimmune disorders, bladder issues, Blogs, chronic pain, Ehlers–Danlos Syndrome, fibromyalgia, Interstitial Cystitis, irritable bowel syndrome, mental illness, PTSD
When life gets tough, sprinkle it with glitter. Sharing the things that make me smile, in the hope they make you smile too.
Chronic Pain Support For All