Dysautonomia
anxiety/ depression, autoimmune disorders, CFS/ME, cluster headache, digestive disorders, dysautonomia, heart disease, Lupus, migraine, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease, thyroid disorders
Creating positive experiences for children and adults living with a chronic illness and/or disability and raising awareness and funds through art.
anxiety/ depression, autoimmune disorders, Blogs, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, lung issues, migraine, neurological disorders, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
Health care experience and chronic illness blog; rare disease and patient journey advocacy
Blogs, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, irritable bowel syndrome, migraine, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease, Sacroiliac Joint Dysfunction, TMJ
A spoonie journeying towards becoming a fully fledged make-up artist!
Brain Tumors, chronic pain, Cushing’s, digestive disorders, dysautonomia, gastroparesis, mental illness, neurological disorders, rare disease, thyroid disorders
I have been going through a hell of a degenerative neurological disease called small fiber autonomic polyneuropathy for the last 19 years of my life. I’m only 29. This is my story of survival beyond the odds.
allergies, Blogs, CFS/ME, chronic pain, dysautonomia, Inflammatory bowel disease, irritable bowel syndrome, neurological disorders, rare disease
My name is Chantelle Spies, and I am a 24-year-old Chemical Engineer and dog mom, struggling with a chronic illness known as Myalgic Encephalomyelitis (ME/CFS). As an engineer, it is in my nature to want to solve complex problems and optimize processes – my health has proven to be no different. I do as much research and reading as possible to equip myself with knowledge and information to help manage my disease.Beside me every step of this journey is my two little guardian angels, Nemo and Bolt, and my wonderful family. The odds of finding a full remission is slim, but I will continue to search for my root cause and ways to improve my health and wellness. I am an overachieving perfectionist, with a bubbly and humorous personality and strive to bring hope to my fellow spoonies.
allergies, anxiety/ depression, autoimmune disorders, Blogs, Celiac’s disease, dysautonomia, Inflammatory bowel disease, irritable bowel syndrome, Postural Orthostatic Tachycardia Syndrome (PoTS)
Chronically Salty: Chronic Illness Life Hacks. A positive environment filled with advice for living with chronic illness for every and all spoonies!
ADD/ADHD, anxiety/ depression, autoimmune disorders, bladder issues, Blogs, chronic pain, dysautonomia, fibromyalgia, migraine, Multiple Sclerosis (MS), neurological disorders, Polycystic Ovary Syndrome (PCOS), Psoriasis, sleep disorders
Writing about life with chronic illness, the good, the bad, the ugly and all the realities that come with these.
Blogs, CFS/ME, dysautonomia, Ehlers–Danlos Syndrome, gastroparesis, migraine, Postural Orthostatic Tachycardia Syndrome (PoTS)
I am a wife, mom, and writer. I share about my life with dysautonomia and the hope and joy that can be found in the midst of momentary troubles.
allergies, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, gastroparesis, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
Sharing my journey of trying to find my new normal as a medical zebra with a dash of comedy and a splash of realistic optimism.