ehlers danlos syndrome
Finding meaning and beauty in life’s obstacles
anxiety/ depression, autoimmune disorders, Blogs, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, lung issues, migraine, neurological disorders, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
Health care experience and chronic illness blog; rare disease and patient journey advocacy
Blogs, CFS/ME, dysautonomia, Ehlers–Danlos Syndrome, gastroparesis, migraine, Postural Orthostatic Tachycardia Syndrome (PoTS)
I am a wife, mom, and writer. I share about my life with dysautonomia and the hope and joy that can be found in the midst of momentary troubles.
ADD/ADHD, allergies, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, bladder issues, Celiac’s disease, CFS/ME, chronic pain, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, fibromyalgia, gastroparesis, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, mental illness, migraine, Multiple Sclerosis (MS), neurological disorders, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, thyroid disorders, TMJ, vulvodynia
EDS Wellness is a non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with Ehlers-Danlos syndrome (EDS), through print and digital media resources and materials, including seminars, webinars, conferences, coaching and patient advocacy.
allergies, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, gastroparesis, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
Sharing my journey of trying to find my new normal as a medical zebra with a dash of comedy and a splash of realistic optimism.
chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, gastroparesis
This blog is about life with Ehlers-Danlos Syndrome and it’s many comorbid “tag-along” friends that joined us on the ride.
allergies, anxiety/ depression, Blogs, CFS/ME, chronic pain, dysautonomia, Ehlers–Danlos Syndrome, fibromyalgia, irritable bowel syndrome, mental illness, Postural Orthostatic Tachycardia Syndrome (PoTS), PTSD
Drug-Free Recovery from POTS, hEDS, Chronic Fatigue, MCAS & Fibromyalgia.
ADD/ADHD, allergies, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, Bell’s palsy, bladder issues, Blogs, CFS/ME, chronic pain, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), diabetes, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, epilepsy, fibromyalgia, gastroparesis, heart disease, Hodgkins lymphoma, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, Meniere’s Disease, mental illness, migraine, Moebius syndrome, Multiple Sclerosis (MS), Myasthenia Gravis, neurological disorders, Parkinson’s, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, Still’s disease, thyroid disorders, TMJ, Venous thromboembolism (VTE), vulvodynia
Education for patients and healthcare providers on proper physical therapy techniques, natural movement, and restorative exercise for Hypermobility Syndromes, such as Ehlers-Danlos syndrome (EDS), including the complexities often caused by overlapping conditions.
Living with chronic pain is one of the hardest things that many of us have to endure on a daily basis. Living with pain while also coping with the multi-systemic effects of joint hypermobility, commonly diagnosed as Ehlers-Danlos syndrome (EDS), is even more challenging. One of the best treatments for chronic pain due to Hypermobility Syndromes/EDS is learning how to move and exercise properly — our muscles do what our connective tissues cannot.
Move More. Move Better.
Living with chronic pain is one of the hardest things that many of us have to endure on a daily basis. Living with pain while also coping with the multi-systemic effects of joint hypermobility, commonly diagnosed as Ehlers-Danlos syndrome (EDS), is even more challenging. One of the best treatments for chronic pain due to Hypermobility Syndromes/EDS is learning how to move and exercise properly — our muscles do what our connective tissues cannot.
Move More. Move Better.