More than a few times people have seen me on my rollator (they see me rollin’) or wheelin’ in my chair and have asked, “what surgery are you recovering from?” “Did you just get your back done? Hip? Knee?” “You don’t look sick to me!” And other fun things that you may have even heard yourself a hundred times. Never do people guess that it’s a brain injury or stroke, let alone rare brain diseases that caused them.

You’ll learn more in the ‘about’ section on my site, but I consider these CCM (+mixed vascular + HOD) brain lesions to be my invisible BFF because even though you can’t see them (barring me lugging around MRI scans in my bag), they are always with me raising hell and other things.

THE UPSIDE?
My iBFF also helps me in a lot of ways like finding inner strength, living in the moment, being grateful, seeking purpose…you get it. (BTW my friends it’s not easy to do these things, but I find that “fake it till’ you make it” mantra to be particularly helpful!)

I feel like by getting my story out there I’m owning it. Like, “hi I’m Erin, and I have an invisible BFF!” sorta thing. And most importantly, by getting my story out there, it just might help someone else…and that’s what I’m all about.