rare disease
Achy Smile, a blog written by Erica Carrasco, gives a platform to migraine. Together with guest posts, Erica brings awareness to migraine and other illnesses. Life is hard enough without illness, smiling through the pain helps her get through the day.
anxiety/ depression, autoimmune disorders, Blogs, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, lung issues, migraine, neurological disorders, Postural Orthostatic Tachycardia Syndrome (PoTS), rare disease
Health care experience and chronic illness blog; rare disease and patient journey advocacy
HAE Girl is a blog about my experiences with Hereditary Angioedema, and Polycystic Ovarian Syndrome. HAE Girl is all about being yourself, sharing our stories, laughing at our lives and of course, creating a community of chronic illness fighters to support each other.
“Cowden Syndrome and Lhermitte-duclos Disease are words, not sentences.”
ADD/ADHD, allergies, anxiety/ depression, arthritis, autoimmune disorders, cancer, Celiac’s disease, chronic pain, diabetes, Ehlers–Danlos Syndrome, epilepsy, fibromyalgia, gastroparesis, heart disease, Lupus, Lyme disease, mental illness, migraine, rare disease, Sjorgrens, thyroid disorders
A migrainuer creating a one stop resource for medical stories and information.
Chronicling my chronic condition with alliteration, humor, and a whole lot of spoons!
anxiety/ depression, autoimmune disorders, digestive disorders, fibromyalgia, lung issues, rare disease, Sjorgrens, sleep disorders, thyroid disorders
Empowering patients to make informed and proactive health care decisions. In contrast, to current profit-and-politics that are derived from patient illness. Identifying fact from fiction by exposure to a variety of relevant evidence, research, legislation, and current concerns. Topics include comprehensive matters in health care, quality of life, unique experiences and challenges of patients, and families, with rare disease and invisible illnesses.
