pain
anxiety/ depression, autoimmune disorders, CFS/ME, chronic pain, Ehlers–Danlos Syndrome, endometriosis, fibromyalgia, migraine, rare disease, sleep disorders, thyroid disorders
Searching for joy on this detour called chronic illness.
Fight against fading away… The musings of a Spoonie Ghost.
bladder issues, chronic pain, digestive disorders, Inflammatory bowel disease, irritable bowel syndrome, rare disease, thyroid disorders
As a lifelong “spoonie” I have faced the blank stare of doctors who can’t or have no idea how to help, the glare of unbelieving bosses (and “friends”) and pity in the eyes of those who truly love and care for me. I have experienced both good and bad times, like most of you.
I have fought to recover from nine major intestinal surgeries, ongoing intestinal inflammation, chronic debilitating nausea, Hashimoto’s Thyroiditis, abnormal kidney and liver function, abnormal endocrine function, cancerous fibroid tumors resulting in multiple surgeries finally necessitating a full hysterectomy… and now my new favorite – abdominal cutaneous nerve entrapment syndrome – or ACNES.
I have spent my life adapting my behaviors and activities to achieve a level of normality. And I have been quite successful at times. Other times – not so much. I have learned to be very good at hiding my symptoms and medical issues by slapping on a happy face, and some great make-up! I am sure you have too.
So I decided to start this blog to create a resource to make those days a bit more bearable. A place where I strive to find the nugget of goodness in this sea of negativity; the crumb of information or encouragement that may just help one of my fellow “spoonies.” My goal is to share the lessons I have learned and the methods that help me. Hopefully I will help you, make the most you can out of every day.
I have fought to recover from nine major intestinal surgeries, ongoing intestinal inflammation, chronic debilitating nausea, Hashimoto’s Thyroiditis, abnormal kidney and liver function, abnormal endocrine function, cancerous fibroid tumors resulting in multiple surgeries finally necessitating a full hysterectomy… and now my new favorite – abdominal cutaneous nerve entrapment syndrome – or ACNES.
I have spent my life adapting my behaviors and activities to achieve a level of normality. And I have been quite successful at times. Other times – not so much. I have learned to be very good at hiding my symptoms and medical issues by slapping on a happy face, and some great make-up! I am sure you have too.
So I decided to start this blog to create a resource to make those days a bit more bearable. A place where I strive to find the nugget of goodness in this sea of negativity; the crumb of information or encouragement that may just help one of my fellow “spoonies.” My goal is to share the lessons I have learned and the methods that help me. Hopefully I will help you, make the most you can out of every day.
anxiety/ depression, autoimmune disorders, chronic pain, cluster headache, dysautonomia, fibromyalgia, mental illness, migraine, neurological disorders
We are a group of women telling our stories about our lives with migraine, mental illness, and several other chronic illnesses. We believe that by telling our stories we are turning our pain into a purpose, raising awareness, and inspiring hope for others.
Blog about life with Postural Orthostatic Tachycardia Syndrome (POTS), mast cell activation disorder (MCAD), and other various ailments, much of which are still undiagnosed.
anxiety/ depression, arthritis, autoimmune disorders, CFS/ME, chronic pain, fibromyalgia, Lyme disease, migraine, PTSD, rare disease
Living a life full of love, hope, happiness and faith in the face of chronic illness
My thoughts and observations about life with chronic pain.
Nurse and frequent patient blogging about personal experiences with chronic pain, epilepsy, pelvic floor dysfunction, anxiety, rare syndromes and the struggles of chronic illness.
anxiety/ depression, arthritis, autoimmune disorders, Celiac’s disease, CFS/ME, chronic pain, colitis, digestive disorders, Inflammatory bowel disease, lung issues, mental illness, migraine, Psoriasis, PTSD, sleep disorders
Simplifying life. Time saving. Saving Money. Spending more time with family.
Seeking Serenity & Harmony on the homestead while dealing with chronic invisible illness.
Seeking Serenity & Harmony on the homestead while dealing with chronic invisible illness.