rare disease
ADD/ADHD, allergies, Alzheimer’s, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, Bell’s palsy, bladder issues, Blogs, Brain Tumors, cancer, Celiac’s disease, Cerebral Palsy, CFS/ME, chronic pain, chronic pancreatitis, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), Cushing’s, diabetes, digestive disorders, dysautonomia, Dystonia, Ehlers–Danlos Syndrome, endometriosis, epilepsy, fibromyalgia, gastroparesis, heart disease, Hodgkins lymphoma, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, Meniere’s Disease, mental illness, migraine, Moebius syndrome, Multiple Sclerosis (MS), Myasthenia Gravis, neurological disorders, Parkinson’s, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, Still’s disease, thyroid disorders, TMJ, Venous thromboembolism (VTE), vulvodynia
Chronically Positive
allergies, Blogs, CFS/ME, chronic pain, dysautonomia, Inflammatory bowel disease, irritable bowel syndrome, neurological disorders, rare disease
My name is Chantelle Spies, and I am a 24-year-old Chemical Engineer and dog mom, struggling with a chronic illness known as Myalgic Encephalomyelitis (ME/CFS). As an engineer, it is in my nature to want to solve complex problems and optimize processes – my health has proven to be no different. I do as much research and reading as possible to equip myself with knowledge and information to help manage my disease.Beside me every step of this journey is my two little guardian angels, Nemo and Bolt, and my wonderful family. The odds of finding a full remission is slim, but I will continue to search for my root cause and ways to improve my health and wellness. I am an overachieving perfectionist, with a bubbly and humorous personality and strive to bring hope to my fellow spoonies.
I write about living with chronic pain and how I try to maintain a positive attitude through it.
anxiety/ depression, bladder issues, CFS/ME, chronic pain, digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, irritable bowel syndrome, mental illness, migraine, neurological disorders, Postural Orthostatic Tachycardia Syndrome (PoTS), PTSD, rare disease, TMJ
Life with multiple disabilities and everything in between.
anxiety/ depression, chronic pain, digestive disorders, endometriosis, gastroparesis, mental illness, rare disease
Eco Fluffy Mama is a blog that focuses on Green Living & Chronic Illness. Tamsin talks about her own health conditions and also hosts guest posts for others to talk out about their health conditions.
ADD/ADHD, allergies, Ankylosing Spondylitis, anxiety/ depression, arthritis, autoimmune disorders, bladder issues, Celiac’s disease, CFS/ME, chronic pain, cluster headache, colitis, Crohn’s disease, CRPS (xomplex regional pain syndrome), digestive disorders, dysautonomia, Ehlers–Danlos Syndrome, endometriosis, fibromyalgia, gastroparesis, Inflammatory bowel disease, Interstitial Cystitis, irritable bowel syndrome, lung issues, Lupus, Lyme disease, mental illness, migraine, Multiple Sclerosis (MS), neurological disorders, Polycystic Ovary Syndrome (PCOS), Postural Orthostatic Tachycardia Syndrome (PoTS), Psoriasis, PTSD, rare disease, Rheumatoid Arthritis (RA), Sacroiliac Joint Dysfunction, Scoliosis, Sjorgrens, sleep disorders, thyroid disorders, TMJ, vulvodynia
EDS Wellness is a non-profit organization promoting health education, integrative healthcare, and wellness strategies for living well with Ehlers-Danlos syndrome (EDS), through print and digital media resources and materials, including seminars, webinars, conferences, coaching and patient advocacy.
allergies, anxiety/ depression, arthritis, autoimmune disorders, bladder issues, Blogs, chronic pain, mental illness, PTSD, rare disease, sleep disorders
Twenty-something with an autoimmune disease trying to build a career as an author, one book and pill at a time.
